Happy #DSMA day! Thank you for visiting this page to learn more about the study. This is also
the post where you have the option to opt-out. All study details are below.
Here is the opt-out form. If you would like to participate in the twitter chat but do not wish to have your responses collected as data for this study, please fill out this form. If you would like your tweets to be included, please leave this form blank.
Information about this study:
This #DSMA chat is a research opportunity which is one part of my larger dissertation project.
The purpose of the overall study is to identify and analyze dominant and counter-narratives
within a sample of diabetes online communities (DOCs) in order to better understand how the
condition of diabetes is being politicized via online social media spaces. This means I am
collecting diabetes-related social media data and analyzing it for narrative themes and their
connection to social phenomena.
There are some risks to participation. Because the data collected for this study is public-facing social media data, there is a high risk that your privacy and confidentiality will be compromised. While measures have been taken to protect your privacy after the data has been collected (removal of identifiers), there are no protections to privacy within the group or outside because anyone can see or track the content shared on Twitter. There is no compensation provided for
this activity. This research may not benefit you directly, however it is possible that the published
findings will eventually benefit diabetes communities at a wider level.
Please note that by NOT opting out, you are consenting to allow the research to collect your responses and use them in the data analysis process. In this way, you are considered a research subject. Your tweets will be analyzed thematically. If the researcher would like to quote you directly, you will receive a DM asking for your email address, and a personalized email will be sent to you with the quote requested. If you do not approve, the quote will not be used. This is in line with the Twitter Terms of Service.
Again, if you do consent to use of your data (not opt-out), you will be considered a participant of this research study. This study will enroll a maximum of 2,180 subjects. Your participation does not involve any other activities. However, if you would like to be contacted for other study- related opportunities (eg. in-depth interview), please fill out the form below.
WHY IS THIS
STUDY BEING DONE?
The purpose of the
overall study is to identify and analyze dominant and counter-narratives
within a sample of DOCs in order to better understand how the condition of
diabetes is being politicized via online social media spaces. While the
overall study has multiple phases, this #dsma tweet chat is a part of phase
2. During this phase, the researcher will be collecting social media data
over a 3- month from individuals who share about diabetes through various
social media platforms. The purpose of phase 2 is to understand the cultural
context of the research site in an empowered and nuanced way.
WHAT WILL I
BE ASKED TO DO DURING THE STUDY?
in this tweet chat will mimic regular #DSMA chats. There will be a set of
questions asked and you may answer them however you see fit. You are
encouraged to interact with others involved in the chat as well. The chat
will last 60 minutes and will ask 6 questions. You will be asked about common diabetes
misconceptions, how diabetes is a part of you, and what you want people to
know about diabetes. You may also be asked to consent to the quoted use of
your social media data, which is optional.
HOW MUCH TIME
WILL I SPEND ON THE STUDY?
60-minute tweet chat will take on [DATE] at 9pm EST.
THERE ANY BENEFITS TO TAKING PART IN THE STUDY?
in this research study may not benefit you directly, but it is possible that
the findings produced by this inquiry may indirectly benefit your respective
diabetes online community.
WHAT ARE THE
MAIN RISKS OF THE STUDY?
The primary risks
presented by this research study are breaches of privacy (others outside of
the study may find out you are a subject) and/or confidentiality (others
outside of the study may find out what you did, said, or information that was
collected about you during the study). Although we ask everyone in the group to
respect everyone’s privacy and confidentiality, and not to identify anyone in
the group or repeat what is said during the group discussion, please remember
that other members of the group may accidentally disclose what was said.
DO I HAVE
OTHER OPTIONS BESIDES TAKING PART IN THE STUDY?
This research study is not
designed to provide treatment or therapy, and you have the option to decide
not to take part at all or withdraw your participation at any time without
identifiable data will be kept only on a master list on a passcode locked
computer that is not Wi-Fi-enabled to prevent access by unauthorized personnel. Once
data analysis is complete, your identifying information in the master list will
be destroyed. The data you shared, once de-identified (within 24-hours of the
time the PI receives your signed consent form), will be stored in a password
protected UIC Box file for a period of five years.
This message has been
approved by the ethical review committee at my university. For questions,
concerns, or complaints about the study, please contact the PI, Heather Walker
at530.755.7673 or email at email@example.com or the faculty
advisor, Dr. Joy Hammel, at 312-996-3513 or firstname.lastname@example.org.
If you have questions about
your rights as a study subject; including questions, concerns, complaints, or
if you feel you have not been treated according to the description in this
form; or to offer input you may call the UIC Office for the Protection of
Research Subjects (OPRS) at 312-996-1711 or 1-866-789-6215 (toll-free) or
e-mail OPRS at email@example.com.
To print a copy of this form
for your records, right click on the webpage and select print. Then select
“save as PDF”. Doing this will produce a printable copy.